Wednesday, March 4, 2009

Biopsy Results-well kind of...

The unofficial biopsy results are from the 10 slides created...(all info is unofficial because I just looked up the pathologists one line read of the slides....I have NOT spoken with a doctor ...yet have spent the entire afternoon and evening working up the details of my own diagnosis).

---it said.....Lymphocytic thyroiditis....there was a comment about the cell spacing but I can't remember the exact words.


I was NOT surprised to discover that this is the same thing as Hashimoto's Thyroiditis....
I will not go into details...but I have been tested for Hypothyroidism at LEAST 6 times since the age of 21. Testing the TSH was the only test ever completed...and when that was within normal range I was always pushed in another direction. So I was diagnosed with Narcolepsy and treated for 10 years...for extreme fatigue...idiopathic hypersomnia. As things continued and I had a two kids the fatigue was often worse and depression settled in....so the diagnoses was changed by my psychiatrist--a few of them....to Depression with possible bi-polar tendencies --oh yes and ADHD to explain the foggy head and inability to concentrate (this was tough because I did not have these symptoms as a child and was always a great student and well behaved). Also...as an adult I cope very well...I just nap...well frequently. I call it "taking to bed" --just for an hour or so...on all days I do not work. Also, I am known to leave a ADHD level of chaos in my life...in my house...car..anywhere that I function. BUT...give me a break I always say...my Husband has been very absent for years and is currently in Iraq for a year. My kids come first, and I work hard at work...kids and job are all going well.

I really do not know what all this means yet. I have two sisters with thyroid issues and psych histories of mood disorders...my one sister that actually had Thyroid Cancer noted that once the Thyroid was removed all of her mood issues and need for medications to manage these issues --disappeared. My other sister is hypo-thyroid but has never had a biopsy and I do not know if there is a specific diagnosis associated with her hypothyroid disease.

So, if these cells do lead me down this direction...well..I would not be surprised. I am leaving room for the Mayo Clinic to work their magic and truly evaluate this situation. I have decided NOT to walk in with my own diagnosis and treatment plan!! I promised my best friend (who know me very well in cases like this) that I will be a "good girl".

The only thing at this point that I would like to suggest if they don't--is a more detailed look at my thyroid function in including a T3 and T4 level as well as a blood test to test of the anti-bodies that would continue to suggest the auto-immune nature of Hashimoto's Thyroiditis.

I DID pull put one of my favorite health guru books....Dr. Weil - Spontaneous Healing. I am a true believer in the power of the body to heal and adjust itself at many levels. I obviously need to figure out what has happened to push my immune system into overdrive or at least figure out how to balance it if possible.

Then...I need to continue to think of my kids....my son Liam has a rather sever case of Vitiligo...auto-immune disorder of the skin...often seen in Hashimoto's disease. I had his TSH tested...it was normal so nothing else was done. So I need to make sure that he get a complete Thyroid work-up and is watched from this perspective as he grows etc.

Bottom line...I feel a small amount of weight lifted off me that my initial findings did not SCREAM THYROID CANCER.....However, I am not concluding anything, because I have limited info..and I am a PICC nurse...not a Endocrinologist. Although.......

1 comment:

MsRogers said...

Nic~ as I said when we were talking on facebook, I am relieved to hear this news... and am sure you are too.. I did read through your blog, and I have actually had this discussion with my internal medicine physician and with the person who supervises me with other medications.. which has changed to one antidepressant,Since my thyroid is under control, and I never skip a day of this anymore.. :-)(and minus alcohol..) the bipolar or ADHD tendancies have disapated.. So in a sense I am glad that things arent always just black and white.. Here is a link that I was sent too to read more about depression and thyroid. http://www.rdhmag.com/display_article/312477/56/ARTCL/none/Feat/HASHIMOTO%E2%80%99S-DISEASE Love you, have a good day. kell